All in all it took approximately 3 months to go from feeling the best I had ever felt to close to death from malnutrition and all the toxins in my system from the waste trapped in my gut.
While going into Hospital definitely saved my life, it also made my worst chronic illness nightmares come true.
- The evidence of why I was being admitted including x-rays, a phone call from my Dr and blood tests was ignored.
- Endocrinologists who don't understand the difference between being in a state of ketosis from a ketogenic/low carb diet made a leap and changed my diagnosis to diabetic ketoacidosis, a very serious condition for type 1 diabetics. This was despite the facts that I have never had an issue with my blood sugars and never been diagnosed with pre-diabetes or diabetes in my life.
- My NDT (natural desiccated thyroid) that I actually need to function and stay alive was taken from me and I was not able to have any thyroid hormone replacement at all for most of my week long stay. Even though I had a legal prescription, had paid for it and had it made up in a compounding pharmacy.
- I was forced to take insulin without my consent which was given to me while I slept through my IV.
- Even though I was literally starving and getting me eating again was supposed to be the highest priority, I was stopped from eating for a full day when I was ready and willing to eat and so hungry because someone on the medical team decided that I needed the endocrinologists permission first. Luckily a nurse called in a senior staff doctor who saw me and said "For God's sake, let her eat and drink what she wants."
- I had to verbally advocate for myself multiple times with several teams of doctors and the endocrinology team which often meant me against 3 to 8 medical staff most of whom kept telling me I was wrong, to stop being uncooperative and basically do what I was told.
Friend in short, it was the most frightening and challenging time of my life to become so sick, so quickly, be physically frail for the first time ever in my life.
Also seeing how easily a wrong diagnosis and people being so determined to be right that they were willing to harm me by ignoring the actual chronic illnesses I have and taking away thyroid hormones that I do need was terrifying.
There is so much more that happened but I would pretty much need to type novel to share it with you.
But, it has made me more determined than ever to do whatever I can to advocate and fight for our rights.
Those of us with chronic illness deserve to be heard, believed and respected!
I have been home now for over a week and am feeling much better and safer and am gradually catching up on everything that needs to be done.
I't's going to take time to build up my strength and muscles, gain some good weight back and feel like my old self again.
I am seeing my own trusted Doctor next week and my goal is to find out what is causing this horrible constipation so that I can make sure that this never happens to me again.
In the meantime, I am working part time again and loving it so yes, you can book in your FREE Discovery Session with me.
While my body is not ready for a marathon, my mind and energy are good and my work is my passion and exactly what I need right now.
Have you ever had your worst nightmares come true Friend?
If you have, I would love to hear about it.
You can tell me by hitting reply to this email. Whatever you tell me will be confidential and not shared with anyone ever!
I posted two videos that you can watch on my youtube channel. One is from hospital and one is from home sharing what I learned about what not do when advocating for your health.
The link to my youtube channel is at the bottom of the email in the "Looking for some free support" section.
