In many ways, the longer you have had chronic illness, the more challenging it is to keep trying to convey your ongoing experience.

For me, the immediate urgency and crisis of the illness is past.

I looked really sick. It was obvious to everyone that there was something seriously wrong with me.

It was easier to get my families support because it was clear I was not well.

We have all adapted.

I look and am so much better, yet getting better for me means running smack up against brand new limitations I didn’t know I had.

This morning was the first morning in a long time that I woke up so low that I wanted to cry. Friend, can you relate?

It’s Friday, its been a busy week, my energy is not always enough to get me through as easily as I would like.

Things around the house are beginning to slide and the need for heavy duty cleaning is building.

Meanwhile, we have a property inspection scheduled for next week which adds some urgency.

I wish it were easy for people to see the invisible limitations, the low energy, the inflammation gunking up the works.

So they could see the energy levels clearly declining as the week goes on.

I wish people could clearly understand that I am not the way I was before, that I can’t do it all, that I need more help and support now and that’s just the way it is.

But, I always go back to the fact that they cannot understand, no matter how much they love you and it’s on me to keep asking, to keep setting those boundaries and to keep reminding them of the things that exist that they can’t see.

But in the meantime, I'm going to get some rest this weekend, try and work out the crazy time zone changes happening between the USA and Australia and enjoy the fact that Summer is finally giving way to some beautiful Autumn days here. I am loving feeling cooler and being able to sleep under the covers again instead of on top of them. 

In February 2012, Bill Gasiamis was a normal Aussie bloke, husband and Father, running his own successful property maintenance company when he suffered his first haemorraghic stroke.

He was beginning to recover and get his life back then the second stroke came along, then the third which meant he had to make the difficult decision at age 40 to have brain surgery to find and stop the slow bleed into his brain that could not heal on its own.

If that was not enough to deal with, it was discovered that he had a thyroid condition that after another surgery, would render him hypothyroid and searching yet again for a way to help himself get his brain, body function and energy back.

Bill's story is truly inspiring, especially when he talks about how he decided to conduct his own life audit, beginning with his relationships with his wife, children and family. 

Have a listen here on the blog or subscribe on iTunes/Apple podcasts, find it on Spotify or ask Alexa to play it for you.

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Rest up, have a great weekend and take good care of you.

Kerry