Friend,
I remember the moment so clearly that I don't think I will ever forget it.
My ex doctor had just finished telling me that I needed to adapt to my "new normal" and all that I had to do was "take my little pill" and get a follow up blood test in 6 weeks time.
I had gone in there feeling like I was dying and I came out feeling the same way.
I could barely stand, walk or talk, was struggling to breathe, sleeping all the time and could not recognise myself in the mirror.
He had nothing else to offer me, knew of nothing I could do to help myself and his only advice was to accept being physically and cognitively disabled, unable to work and barely able to stay awake.
He told me that my thyroid was "past its shelf life" and "it just happens, we don't know why."
As I made my slow and painful way back to my car with my prescription for Eutroxsig, I knew that if I was going to survive this and start to recover, that it was all up to me.
I wasn't willing to believe that vital organs in the body just stop working for no good reason.
I wasn't willing to believe that this was going to be my new life.
It felt incredibly daunting, I had no idea what I was doing or even where to start looking.
I felt terrified and sick, full of grief and anxiety and I had never felt more alone and helpless in my life.
Do you remember the first time that you realised that it was all up to you?
If you want to share your experience with me, please feel free to reply to this email. It will be kept completely confidential, just between you and me.
And remember Friend, if you ever need to talk with me, you can book your FREE 25 minute Discovery Session with me using the link below.
warm wishes
Kerry
P.S.
Episode 18 of the EA podcast with my special guest, Christina Tidwell is live on the blog right now.
Christina shares her story of becoming very suddenly and devastatingly ill with Adult onset Still's Disease at age 18 and how she was left to figure out how she was still going to go to college, live and work despite dealing with a very rare disease.
Listen here on the blog or find it on iTunes or your favorite podcast player and if you enjoy it, please leave a review on iTunes.
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